I forgot what it feels like to live a normal life and I may never experience it again. I have hope, however, with new developments in pharmaceuticals and biotech devices. I keep up with the latest trials and breakthroughs on the horizon.

In the meantime, I do my best with the medicines I am currently taking. No, its not the injectables anymore. I gave up on those in May. Now, I take Plaquenil and Xeljanz. It has taken 3 years to discover these two drugs worked the best in my body – for now.

I know there will come a time when the meds will decrease in their effectiveness. I will work with my Rhematologist once again to find what works.

I am about 60 percent of my normal self. Grateful for the life I have at the moment. It’s good and sufficient for what God has me doing for now. I know if He invites me to join in new adventures, He will match my wellness for the energy needed.

I look forward to 2019 and all it will bring – good days, low days, restful days and days of exuberant activities. I am ready for what will come.

2 thoughts on “Steady Progress: An RA Story

  1. Michelle, I love how you wrote
    “I know if He invites me to join in new adventures, He will match my wellness for the energy needed.” Thank you for the reminder. I am in the middle/depths of coming to terms with diagnosis along with dealing with my family realizing this is for real, that I am not faking and that it comes on and various times and is unpredictable. I keep taking my eyes off the Father. Which in turn only allows the author of lies to distract me.

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    1. Shelley, it is a work in progress to manage this #RALife but I remember God created me to be a warrior through these flares- meaning taking ownership of my self care and letting others know it is a necessary part of managing the disease😔. I pray for you and your family for grace and understanding. Be good to yourself and honor your emotions. Talk through it all with the only One strong enough to carry our heavy burdens – God is always there. ❤️😇 Praying for you in Jesus’ Name Amen.

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